We are so proud of Alexandra, Ida and Leah!
These three VRG students had an idea to raise awareness of rare diseases. This “kitchen table” idea, as they call it, turned quickly into action. They are true social entrepreneurs!
They organized a gala evening where different speakers (researchers, parents, organization leaders, etc) told of their experiences with rare diseases and the impact that research can make. In addition, to this series of informative talks and live entertainment, the students also organized an art auction. By securing donated art, all of the proceeds from the auction went solely to the newly created fund, Sällsyntafonden.
The event was hugely successful. Not only did the event raise awareness, but the students were also able to raise more than a half a million Swedish crowns.
This was not an assignment in school. This was an idea turned into action because they cared. Their engagement and dedication is inspiring to us all.
In addition to this event, the students have dedicated their senior project to this topic. They have authored a book telling the details of these diseases, the research connected and written about the individual stories of several families who are challenged with a rare disease in their day-to-day lives.
Are you interested in more information about Rare Diseases and current research and treatment? See here>>
More articles (in Swedish) on the students fantastic work:
Det skadar inte att ha höga ambitioner
Sällsynt gala samlade in 500 000 till forskning för sällsynta diagnoser
Would you like to donate to this important cause? You can donate via BG 909-1109 or Swish to 123 312 97 23, please note: Sällsyntafonden.
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